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Links
Related to End-of-Life
ABCD Home Page
Americans for Better Care of the Dying (ABCD) is dedicated to social,
professional, and policy reform aimed to improve the care system for
patients with serious illness, and their families. The site offers
outstanding resources, including excerpts from the books Handbook for
Mortals and Improving Care for the End of Life.
www.abcd-caring.org
California
Department of Health Services Licensing and Certification - Nursing Home
Residents' Rights
Know Your Rights as a Resident in a Nursing Home -- The Licensing and
Certification Program provides a packet of material designed to assist
you in understanding Nursing Home Residents' Rights. To view the various
portions of the packet, please visit their website.
www.dhs.ca.gov/lnc/nhrights
California
Thoracic Society
The California Thoracic Society (CTS) is the professional society
committed in its mission to improve California lung health and advance
the science and practice of pulmonary and critical care medicine. It is
the largest Chapter of the American Thoracic Society and the medical
section of the American Lung Associations throughout the state. CTS has
developed the following end-of-life documents.
http://www.thoracic.org/ca.html
Caring Connections
Caring Connections provides state-specific advance directives for all 50 states.
Center to Advance Palliative Care
(CAPC)
The Center to Advance Palliative Care (CAPC) is a resource
for hospitals and health systems interested in developing palliative care
programs. The Center serves a broad constituency of providers and
interested groups - including physicians, nurses, educators, policymakers,
health researchers, payers, students and, ultimately, patients and their
families - in an effort to improve the availability and quality of
palliative care. CAPC is a national initiative supported by The Robert
Wood Johnson Foundation with direction and technical assistance provided
by Mount Sinai School of Medicine.
www.capc.org
ELNEC
The End-of-Life Nursing Education Consortium (ELNEC) project is a
national education initiative to improve end-of-life care in the United
States. The project provides undergraduate and graduate nursing
faculty, CE providers, staff development educators, specialty nurses in
pediatrics, oncology, critical care and geriatrics, and other nurses
with training in end-of-life care so they can teach this essential
information to nursing students and practicing nurses.
www.aacn.nche.edu/elnec/
EPEC
The Education for Physicians on End-of-life Care (EPEC) project is
designed to educate all physicians on the essential clinical
competencies required to provide quality end-of-life care. A
comprehensive set of training materials is available.
www.epec.net
End of Life
Physician Education Resource Center (EPERC)
The End of Life Physician Education Resource Center (EPERC) is a
central repository for educational materials and information about end
of life (EOL) issues designed for physicians and other educators. After
registration one has full access to the "educational
resources" link, including the invaluable series of one-page
publications called "Fast Facts."
www.eperc.mcw.edu
Finding Our Way
A groundbreaking series of articles, Finding Our Way: Living with
Dying in America, premiered in the fall of 2001 in newspapers across the country.
The series, distributed by Knight-Ridder Tribune, serves as a short
course on death and dying and covers a variety of topics related to the
subject. The practical advice, resources, and personal stories in
'Finding Our Way' can teach how to approach these most significant life
events with the same kind of planning and emotional preparedness people
strive for in the rest of their lives.
The series of 15 articles is available on the 'Finding Our Way' Web
site.
www.findingourway.net
Those willing to encourage their local newspaper to run the series may
refer them to this site,
http://www.krtdirect.com/dying
Growth
House: Guide To Death, Dying, Grief, Bereavement, and End Of Life
Resources
In addition to offering a database of resources on end-of-life
issues, Growth House functions as an on-line community for people
interested in end-of-life care. A single registration gives health
professionals access (without charge) to dozens of on-line discussion
groups, including those of the California Coalition for Compassionate
Care.
www.growthhouse.org
Last Acts Campaign to
Improve End-of-Life Care
Last Acts, sponsored by the Robert Wood Johnson Foundation, is a
membership organization committed to raising awareness of the need to
improve care of the dying and sharing issues and ideas at the national,
state and local levels. Once at the site, click on the "Getting the
Most from this Web Site" link at the bottom of the home page.
Registering will give you full access (without charge). Enrolling your
organization as a partner will yield yet more resources and benefits.
www.lastacts.org
Last
Acts Partner Promoting Excellence in End-of-Life Care
Last Acts Partner Promoting Excellence in End-of-Life Care announces
the addition of a critical new resource to the clinical and research
fields of palliative care to its Web site. "Key Clinical Assessment
and Research Tools" is the culmination of over a year's efforts
compiling important tools that are validated and used with palliative
care populations and are of interest to palliative care providers and
researchers. The primary goal of the collection is to provide an easy
way for providers and researchers to access the tools - a "one stop
shop" for palliative care instruments. For easy retrieval, the
tools are organized both alphabetically and by topic. For those tools
whose authors prefer not to post them on the Web, information on the
tools or links to Web sites where they can be obtained are provided.
http://www.promotingexcellence.org/
Mayday Pain and
Resource Center
The City of Hope Pain/Palliative Care Resource Center Nursing
Research and Education Website is a clearinghouse for pain assessment
tools, patient education materials, quality assurance materials,
research instruments and other resources relevant to end-of-life care.
http://mayday.coh.org
Midwest Bioethics
Center
Midwest Bioethics Center is a community-based ethics center which
oversees the program called Community-State Partnerships To Improve
End-of-Life Care, of which the California Coalition for Compassionate
Care is a part. Click on the "Policy Briefs" link for
newsletters about end-of-life issues in bioethics, nursing homes, etc.
www.midbio.org
On Our Own
Terms: Moyers on Dying - End-of-Life Tools
"On Our Own Terms: Moyers on Dying" aired on public
television in September 2000. The site offers information about the
series and supplementary materials.
www.thirteen.org/onourownterms
Seeing the
Difference: Conversations on Death and Dying
Seeing the Difference: Conversations on Death and Dying, the
site of the project of the Doreen B. Townsend Center for the Humanities
at the University of California, Berkeley, includes 1) the transcribed
proceedings and exemplary study questions from the "Seeing the
Difference" institute held in the summer of 2000; 2) the 50 minute
video made from the complete videotaped proceedings; 3) an outline of
(and excerpts from) the original conference. The Proceedings are
available for sale in video and book formats, but they can also be
viewed (and the Proceedings downloaded) from the site.
seeingthedifference.berkeley.edu
With Eyes
Open
"With Eyes Open" was produced by KQED television in San
Francisco and aired throughout the country in September 2000 as a
companion to "On Our Own Terms." The four programs discuss
caregiving, grief, difficult decisions and what may lie beyond death.
www.pbs.org/witheyesopen
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