Nursing Facility Education

Home | About the Coalition | Nursing Facility Education | Professional Education | Consumer Outreach | Community-Based Coalitions | Advance Directive Education | Publications & Materials | Legislation | Hospital-Based Palliative Care | End-of-Life Links & Search Engine

Our work with nursing facilities was featured in the Journal of Palliative Medicine.
T Hill, M Ginsburg, J Citko, M Cadogan, Improving End-of-Life Care in Nursing Facilities: The Community State Partnership to Improve End-of-Life Care — California, J Pall Med, Vol 8, No 2, p 300, 2005.

ECHO Nursing Facility Recommendations
January 2000

The 28-page ECHO Nursing Facility Recommendations was produced by a 22-member inter-organizational statewide task force formed in May 1997 to improve end-of-life care in California skilled nursing facilities. Known as the ECHO (Extreme Care, Humane Options) Long-Term Care Task Force, its members included the California Department of Health Services, the California Association of Health Facilities, the California Association of Homes and Services for the Aging, the California Board of Registered Nursing, and other healthcare professionals, long-term care representatives and consumer advocates. The California Coalition for Compassionate Care field-tested the Recommendations in 1999 prior to final revisions, then used them extensively in the year 2000 training program described above.

To view a PDF version of the Recommendations, click here (file size: 1.07 MB).

return to top

 

Training Resources

The California Coalition for Compassionate Care used the following materials in the April 2000 and June 2001 training programs. Many of these documents are in PDF format. To view PDF files, you must have the Adobe Acrobat Reader. If you do not already have the Acrobat Reader installed, you may download it free from Adobe's Acrobat download page.

Introductory exercises

The End-of-Life Decision-Making Survey consists of 18 true-false questions about advance care planning and end-of-life care. The Survey Leader's Guide describes its use. Many of the questions are specific to California. Please contact Terry Hill at thillmd@pacbell.net if you are interested in modifying the survey for other areas.

The Choices and Values Exercise offers an engaging introduction to the complexities of end-of-life decision-making. See the Choices and Values-Leader's Guide.

Changing practice:
Assessing your facility and making an action plan

Section II of the ECHO Nursing Facility Recommendations, "Recommended Outcomes and Strategies," describes improvement strategies available to SNF leadership teams, healthcare professionals, conservators, regulatory agencies, professional associations and academic institutions. Here we offer four tools specifically for SNF leadership teams:

Changing What Happens in Nursing Facilities
Getting Started
Assessing Your Facility's Policy and Practice of End-of-Life Care
Checklist Review Following an Expected Death

Improving practice requires understanding and changing the processes of care. Unless you are lucky enough to find a quick fix, you may need to answer a series of process improvement questions which we have borrowed from quality improvement formats such as FOCUS-PDCA. For an example of flow-charting a process, see End-of-Life Decision-Making in SNFs: The Most Common Pathways for What Really Happens.

End-of-life decision-making, pain and symptom management

Please see Section III of the ECHO Nursing Facility Recommendations, "Advance Care Planning." Marlys Huez, JD, and Shirley Paine, JD, have prepared a Summary of Law on Medical Decision-Making specific to California.

We used two case studies as teaching tools in the training:
case study #1 and case study #2

The following PowerPoint presentations cover additional training topics:

What is Good End-of-Life Care? (Terry Hill)
Process Improvement (Terry Hill)
End-of-Life Decision-Making: Ethics and Communication (Terry Hill)
Pain Assessment and Management (Mary Cadogan, et al.)
     Module 1
     Module 2
     Module 3
     Module 4
Hospice/Nursing Facility Interface (Wendy Stein)
Non-Pain Symptoms and Psychological Issues (Terry Hill)
The Last 48 Hours (Wendy Stein)
Care of the Soul at the End-of-Life (Marita Grudzen)
Hydration and Nutrition (Patty Pasquarella)

return to top

Promising Practices

Through our Promising Practices initiative, we worked with a small group of California nursing facilities that were doing something well in the provision of end-of-life care, provided technical assistance and mentoring to refine these practices into replicable models that can be adopted by other nursing facilities statewide and nationally. Find out more about these models.

return to top

Commitment to Compassionate Care

Two-Day Program

This program has trained  298 people representing 109 nursing facilities and other organizations in California to become model sites for the delivery of end-of-life care. Topics covered in the initial two-day training include:

  • Communication skills for facilitating advance care planning
  • Legal and ethical considerations
  • Managing pain and other symptoms
  • Hydration and nutrition
  • Developing a successful action plan for improving practice

Comments from Commitment to Compassionate Care Participants: 

  • Terrific, enthusiastic presenters! 
  • Provided concrete information and perspectives that can be incorporated into policy and education for staff and families. 
  • This program provided comprehensive coverage on end-of-life care issues. 
  • I've always thought these issues were important, very strong reinforcement for me!
  • Action Planning - excellent! Most workshops don't get any work done - this one did! 
  • This was an excellent introduction to end of life... we left with several things we can implement in our facility. 
  • Outstanding program!

One-Day Program

Sponsored by the California Coalition for Compassionate Care (Coalition) in collaboration with the American Society on Aging (ASA). Other co-sponsors are the California Association of Health Facilities, California Association of Homes and Services for the Aging, the California Healthcare Association and the California Association of Long Term Care Medicine. 

The Coalition's successful Commitment to Compassionate Care program was condensed into a one-day format for skilled nursing facilities and other providers of care to seniors. The following two one-half day intensives are offered on an annual basis.

A Good Death: Effective End-of-Life Care. This session explored the complexities in determining residents' preferences for care, how to elicit effective conversations and operationalize residents' goals of care, understand the impact of the law and ethics on care of the dying.

The Dying and Their Family - Providing Physical and Spiritual Care. This session helped participants gain a better understanding of common symptoms that arise at the end of life, including pain, agitation, fatigue and nausea, while exploring ways to assist in alleviating physical and spiritual discomfort.

return to top

This web page was last updated on 10/30/06.

Home | About the Coalition | Nursing Facility Education | Professional Education | Consumer Outreach | Community-Based Coalitions | Advance Directive Education | Publications & Materials | Legislation | Hospital-Based Palliative Care | End-of-Life Links & Search Engine

Home | About Us | Nursing Facility Education | Professional Practices | Consumer Education
Community-Based Coalitions | Advance Directive | Publications and Materials | Public Policy
 
 Palliative Care Services | Links